
Why Being Social Can Be Scary When You Have Chronic Illnesses
Recently, my social life has been quite busy (unusual for me these days). My sister turned 50, my dad turned 80, a friend had a baby shower and I’ve had a number of other catch-ups with friends.
I work from home, but I also manage to get out of the house regularly with two different weekly exercise classes, two different monthly support group meetings, grocery shopping and various other bits and pieces. Nothing extraordinary there, I here you say. But wait! I also have rheumatoid arthritis, fibromyalgia and type 2 diabetes along with other related conditions and side effects. These give me fluctuating and unpredictable levels of pain, strength and energy.
At home, I have routines that help keep these symptoms relatively stable. I have frequent rest breaks during the day. I don’t stand or walk for long periods and I wait until I feel up to it before attempting physical tasks like vacuuming. I also have control over the foods I eat so I avoid excess sugar, overly-processed foods, and gluten. (I don’t have celiac disease but I am trying it to see if it helps with my overall energy and vitality – so far, so good.)
A lot of that attempted stability disappears when I go out with others. Don’t get me wrong, I want to go out. I enjoy celebrating big events and seeing my friends.
But… There are always consequences.
Limited energy supply
Some of you may be familiar with the spoon theory. The idea behind it is that people with chronic illnesses only get a limited supply of energy (or spoons) each day. We have to ration our energy so it lasts until we go to bed. If we use t
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