
Things I Want You To Know About Type 1 Diabetes
No pictures today. Instead, here is a list of things I want you to know about diabetes.
I want you to know that there is no “controlling” diabetes. There is diabetes management, there is experience, and there is a “be ready for anything at anytime”, but there is no control. We do our best to “manage” our daughter’s diabetes. But there are way to many variables that affect her blood sugar to EVER use the word control. And now that we are heading into puberty? Hormones and growth spurts and boys, oh my!
I want you to know that as much as we like to talk about how normal we try to make our daughter’s life, with diabetes there is no normal. My daughter has never been to a sleepover (not even at grandma’s). When there is a school field trip, one of us parents attends to take care of her food needs and insulin requirements. Everywhere we go, (even to the corner market) we carry a glucagon kit that has a needle straight out of this scene from Pulp Fiction. Even that trip to the market requires a backpack full of stuff. When her blood sugar is high, (which is often after meals) focus and attention are strained, making tests, studying, and learning difficult. My daughter can drink a juicebox and eat crackers in bed. Without waking up. We worry every night that she will go to bed and not wake up.
I want you to know that we live in a constant state of flux. Things change rapidly. One minute you are singing Christmas carols and decorating the tree, and the next minute you are in the ER and calling in to work sick for the next 4 days due to your child getting the flu.
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