Tallahassee boy heads to Washington to advocate for those with type 1 diabetes
Crew Carlile, 9, was selected by JDRF to represent North Florida at the upcoming Children's Congress in Washington, D.C. He and his mother Andrea sit down with the Democrat's Nada Hassanein to talk about juvenile type 1 diabetes and JDRF's mission. Hali Tauxe/Democrat
Crew Carlile isn’t afraid of needles.
“I'm like, ‘OK, what did you just do?’” he says slowly. “It's like a small prick.”
The 9-year-old has type 1 diabetes, an autoimmune disease that causes the pancreas to stop producing insulin, a hormone that helps regulate blood sugar.
Crew was diagnosed at three years old after his parents noticed that he was always thirsty and his diapers perennially soaking wet — classic symptoms of the disease.
“Every time I would try to run away,” Crew said, remembering the pricks and shots during the first year after his diagnosis. “I was only four years old!”
Since then, the fourth-grader has gained courage.
On Monday, just before his “diaversary,” Crew will be heading to Washington, D.C., to represent North Florida at the Juvenile Diabetes Research Foundation’s Children’s Congress. He’s one of 150 kids selected out of 1,300 applicants.
The articulate child delegate will be a voice for thousands of kids around the country with type 1 diabetes. He'll meet with members of Congress and other federal officials to advocate for government funding for diabetes research and to spread awareness about the chronic disease that affects more than 100,000 American children.
"We're going there to tell our senators about life with juvenile type 1 diabetes, because Continue reading