Resources
The Internet has numerous sites for adults with Type 1 diabetes to find community with others and to locate helpful resources. Online Forums and Information AMERICAN DIABETES ASSOCIATION Message boards specifically for adults with Type 1 diabetes, as well as for people with common interests such as using an insulin pump. CHILDREN WITH DIABETES www.childrenwithdiabetes.com/d_0c_000.htm Essays by adults with Type 1 diabetes and links to other relevant Web pages. DIABETES DAILY www.diabetesdaily.com/forum Numerous forums, including one specifically for people with Type 1 diabetes. TYPEONENATION Message board for adults with Type 1 diabetes. REALITY CHECK www.realitycheck.org.au Website of the Australian-based nonprofit organization Type 1 Diabetes Network, Inc. Has articles, forum, and a free e-mail newsletter. Online Videos YOUTUBE Mike Lawson’s My Life As A Pin Cushion: “The Diabetes Police” www.youtube.com/watch?v=nrm7z0owxoc Other entries in Lawson’s My Life as a Pin Cushion series include “Carb Counting,” “Morning Routine,” and “What is Diabetes?” Education and Support BEHAVIORAL DIABETES INSTITUTE (858) 336-8693 Adults with Type 1 diabetes living in the San Diego area can take advantage of the program offerings of the Behavioral Diabetes Institute, including workshops, classes, and support groups. Some programs are free, and some have a fee. Books GROWING UP AGAIN Life, Loves and Oh Yeah, Diabetes Mary Tyler Moore St. Martin’s Press New York, 2009 CHILDREN WITH DIABETES “Books for Parents, Adults, and Older Kids” www.childrenwithdiabetes.com/d_06_b00.htm List includes memoirs by adults with Type 1 diabetes, guides to diabetes management, and tips on getting the most from life when living with Type 1 diabetes. Continue reading >>
Diabetes Support
We provide healthcare, education and support services for those at-risk for diabetes and living with diabetes and their families. Any individual diagnosed with diabetes is automatically eligible to be a part of North Country HealthCare’s diabetes collaborative and diabetes care program. What is Diabetes? Diabetes occurs when a person has too much glucose (or sugar) in their bloodstream and not enough insulin to bring the amount of sugar down to a healthy level for their body. There are four types of diabetes: Type 1 diabetes occurs in childhood and happens when the body does not produce insulin. Type 2 or adult-onset diabetes usually occurs in adults and occurs when insulin production slows and/or the body is not able to use the insulin it produced. Prediabetes is diagnosed when sugar levels are higher than normal, but not as high as in diabetes. Gestational diabetes happens during pregnancy when a woman’s body is unable to produce enough insulin or becomes insulin resistant, which results in high blood sugar. Gestational diabetes can be dangerous for the mother and the infant, both during pregnancy and after birth. Education & Group Classes Diabetes education and self-management empowers a person to take control of their diabetes care and needs. We provide education, group classes, support groups and curriculum to give patients the tools they need to achieve health and wellness while managing diabetes. Diabetes in Pregnancy Class The Diabetes in Pregnancy class offers education to prevent, manage, and reduce complications of diabetes, as well as how to maintain a healthy pregnancy. Classes include a prenatal check with a family nurse practitioner and information about your health, your baby’s health, physical activity, healthy diet habits and much more. Your prov Continue reading >>
Type 1 Diabetes: Resources
Organizations American Association of Diabetes Educators 100 West Monroe Street Suite 400 Chicago, IL 60603 Phone: 1-800-338-3633 Fax: (312) 424-2427 E-mail: [email protected] Web Address: The American Association of Diabetes Educators is made up of doctors, nurses, dietitians, and other health professionals with special interest and training in diabetes care. It can supply the names of these types of health professionals in your local area. American Diabetes Association (ADA) 1701 North Beauregard Street Alexandria, VA 22311 Phone: 1-800-DIABETES (1-800-342-2383) E-mail: [email protected] Web Address: The American Diabetes Association (ADA) is a national organization for health professionals and consumers. Almost every state has a local office. ADA sets the standards for the care of people with diabetes. Its focus is on research for the prevention and treatment of all types of diabetes. ADA provides patient and professional education mainly through its publications, which include the monthly magazine Diabetes Forecast, books, brochures, cookbooks and meal planning guides, and pamphlets. It provides information for parents about caring for a child with diabetes. Juvenile Diabetes Research Foundation International 120 Wall Street New York, NY 10005-4001 Phone: 1-800-533-CURE (1-800-533-2873) Fax: (212) 785-9595 E-mail: [email protected] Web Address: The Juvenile Diabetes Research Foundation International's mission is to find a cure for diabetes and its complications through research. This organization publishes a wide variety of booklets on complications and treatments of diabetes. The organization's focus is on research for the prevention and treatment of type 1 diabetes. National Diabetes Education Program (National Institute of Diabetes and Digestive and Kidney Diseases, Continue reading >>
Jdrf Resources Program
To support you during the early days of diagnosis, JDRF supplies Diabetes Educators with specially developed packs for people and their families at type 1 diabetes diagnosis. These packs help patients understand how their life has changed, provide practical support and information and advice on how they can adapt. KIDSAC The JDRF KIDSAC pack program provides a free backpack for families with newly diagnosed children. The pack contains lots of valuable information including a: Caring for Diabetes in Children and Adults: A Parent's Manual ‘Rufus' the teddy bear who can help a child learn about injections A blood glucose testing meter t1d kit The t1d kit is designed for newly type 1 diabetes diagnosed older teens and adults to help you practically manage your diabetes. The stylish t1d satchel contains: 'Straight to the Point' - a comprehensive guidebook for adults with type 1 diabetes written by people who have "been there, done that". A diabetes sick day kit A book to help count fat and carbohydrate intake A blood glucose testing meter Straight to the Point Book The Straight to the Point book was written by people with type 1 diabetes and health care professionals, for adults and young adults with type 1 diabetes. It includes practical advice on day-to-day life with type 1 diabetes. You can download a digital copy of the Straight to the Point book here. Available from your Healthcare Professional These packs are available through your diabetes healthcare professional and are kindly supported by AMSL Diabetes, the distributors of OneTouch© Insulin Pumps and Glucose Meter Ranges and Dexcom© Continuous Glucose Monitoring Systems. Both KIDSAC and t1d kit include The Traffic Light Guide to Food resource developed by the Sydney Diabetes Centre at Royal North Shore Hospital. Continue reading >>
T1decoded | Resources
TuDiabetes provides an online community forum for patients to share stories, questions, and resources. There is also a Spanish version . User-submitted content provides helpful perspective but searching can betime-consuming; using the search bar at the top right and with the search term type 1 AND X can help refine your results: The twitter-based Diabetes Online Community ( #DOC ) is aneducation-, technology- and support-focused collection of type 1s that discuss policy changes, new technology, emotional challenges of diabetes, etc. often in live-time. Follow @diabetessocmed andtune into Diabetes Social Media Advocacy (#DSMA) chats Wednedays at 9pm EST for simple questions, thought-provoking responsesstrengthening the diabetes community one Tweet at a time. #DOC Infographic. (Source: Diabetes Hands Foundation) Facebookand Meetup are good places to search for a forum/type 1 group in your city. For a supercharged, concentrated dose of support and learning, consider a weekend away at an in-person conference. Scholarships are often available. UnConference allows participants to create and moderate the agenda, allowing for a wide variety of topics and viewpoints that might never be covered in a traditional conference. Connected in Motion This Canadian organization will be hosting an outdoorsy weekend on Catalina Island, California in Fall 2016! Diabetes Sisters Female-focused support for T1s and T2s. Children with Diabetes hosts technology and community conferences with muchapplicable to an adult audience. Local universities and type 1 non-profits often host specialty events and lectures. Continue reading >>
Diabetes
Diabetes is a disease in which blood glucose levels are above normal. Diabetes can cause serious health complications including heart disease, blindness, kidney failure, and lower-extremity amputations. For an infographic about diabetes, click here . Type 1 Diabetes: due to the body no longer making (enough) insulin; cannot prevent type 1 diabetes from occurring; autoimmune, genetic, and environmental risk factors; accounts for about 5% of all diagnosed cases of diabetes Type 2 Diabetes: due to the body not making enough insulin or using insulin as it should; moderate weight loss and exercise can prevent or delay type 2 diabetes; risk factors include older age, obesity, family history of diabetes, prior history of gestational diabetes, impaired glucose tolerance, physical inactivity, and race/ethnicity; accounts for 90-95% of all diagnosed cases of diabetes Gestational Diabetes: due to the body not utilizing insulin correctly during pregnancy; risk factors include obesity and gaining too much weight during pregnancy; occurs during 2-10% of pregnancies Prediabetes: Blood glucose levels that are higher than normal but not yet in the diabetic range, usually without symptoms. People with pre-diabetes have a higher risk of developing type 2 diabetes. However, weight loss and increased physical activity may prevent or delay diabetes and may return blood glucose levels to normal. For an infographic about prediabetes, click here . Find out if you're at risk for diabetes; take a quick survey . 8.5% of adults in DuPage County have diabetes (as of 2012) Diabetes is the 8th leading cause of death in DuPage County (as of 2011) 2 out of every 5 Americans are expected to develop type 2 diabetes in their lifetime Half of all Hispanic men and women and non-Hispanic black women are pred Continue reading >>
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Community Resources For Diabetes And Pre-diabetes
Diabetes is becoming a major health problem in the United States. People with the disease will get sicker without good care by the doctors and programs that can help them. Health problems of the kidneys, skin and eyes are common. More than 1 out of 10 adults has the disease. Some of these people know they have it because a doctor has done tests and told them so. Others also have the disease, but don’t know it because they have not had the tests or seen a doctor. And 1 out of 3 adults has pre-diabetes, meaning they show signs they’ll get the disease if steps aren’t taken to get healthier. Keeping blood sugar, blood pressure and cholesterol levels healthy are the best signs that diabetes is controlled. But, only about 1 or 2 out of every 10 people are able to do this well. Studies have shown that diabetes education is not only helpful, but necessary for people to reach this goal. Even people who are in danger of getting the disease can do things to keep it from happening. There are many programs that help both groups. The Diabetes Referral Network has put together this list of resources that serve people with diabetes or pre-diabetes. Each resource or program has agreed that 1) they have experts who have studied the disease, and 2) will give special care to the people who live with it. We always tell patients to work with their doctor first. But these community health workers and other programs can help with more ways to manage the disease. They will answer questions, teach skills, and tell patients about other places to get help. Diabetes Self-Management Education Programs: Learning what YOU can do to take the best care of yourself and your disease. Diabetes Prevention Program Nutrition Diabetes Educator Physical Therapy Community Health Workers Insurance/Affording Continue reading >>
Type 1 Diabetes Program | Patient Resources
It’s essential to remember that while learning that your child is struggling with diabetes can feel very isolating, many children and their families have been down this path before. We’ve helped them, and we can help you, too. There are lots of resources available for your family—within Boston Children’s, in the outside community and online. These include: Patient education From the very first visit, our staff will be on hand to walk you through your child’s treatment plan and help answer any questions you may have. And they’ll also reach out to you by phone, continuing the care and support you received while at Boston Children’s. Parent to parent Want to talk with someone else whose child has been treated for diabetes? We can put you in touch with other families who have been through similar experiences and can share their stories. Social work and mental health professionals Our social workers and mental health clinicians have helped many other families in your situation. We can offer counseling and assistance with issues such as coping with your child’s diagnosis, stresses relating to coping with illness and dealing with financial difficulties. Helpful links: Want to learn more about living with diabetes? Here are some good sites: The American Diabetes Association offers the basic facts about diabetes treatment, as well as issues patients and families may face in the months and years ahead. Here’s a page to help you understand how average glucose is measured. American Association of Diabetes Educators provides tips and education about caring for your child and helping her manage her diabetes. The American Dietetic Association features information about how changes in diet can help control diabetes. The Centers for Disease Control and Prevention (CDC) Continue reading >>
Achs Resource Guide - Details - Patient Support - Ammonoosuc Community Health Services
We have taken the time to review these websites and feel they offer good information. These resources are intended to help better educate and inform viewers, they are not intended to replace the advice of your health care provider. This is a wonderful local resource website that links you to other area support services websites ranging from counseling services to housing to legal services. It includes contact information, a brief description of the agency and provides a link to the agencys website. ServiceLink Resource Centers are trusted places in your community to get answers about healthcare and other services for older adults, persons with disabilities and family caregivers. The ServiceLink Resource Centers network consists of local and accessible community based offices that can help you: Access resources you need to make informed choices and live independently in your community Explore your future care and evaluate your long-term care options, including the pros and cons of specific choices Become involved through various volunteer opportunities The National Institutes of Health provides an excellent, up-to-date, accurate and extremely well-organized patient health information "online catalog". Visitors may choose a variety of ways to browse and search for information on health topics from A-Z. Simple list type navigation reduces distractions. The Centers for Disease Control and Prevention provides users with credible, reliable health information on Data and Statistics, Diseases and Conditions, Emergencies and Disasters, Environmental Health, Healthy Living and much more. Lots of multi-media options and applications to get health information on the go. The patient education content at the Family Doctor Web site is written and reviewed by physicians and patient ed Continue reading >>
Patient Community T1d Exchange
Patient Community Brian Becker 2017-09-11T12:30:54+00:00 Glu isT1D Exchanges type 1 diabetes online community designed to accelerate research and amplify the collective voice of those living with T1D. On Glu, people living with T1D can connect with others, contribute to discussions, research, and learn from the wealth of rich information on the siteand thats just the beginning. Crowdsourced citizen science emerges from the community offering a fresh perspective to complement traditional methods of inquiry. Glu is over 21,000 patients, caregivers, and supporters strongwith more people joining daily. Traditional models of research and healthcare delivery are enhanced by direct patient involvement in the discovery process and treatments related to their own health. Data are collected in a variety of ways from the site, ranging from simple polls that do not require IRB approval to complex studies that examine longitudinal data. Thanks to the dedication of our patient and caregiver participants, T1D Exchange has been able to help drive progress and support the important needs of people with type 1 diabetes. Some recent success includes: More insured test strips: Our data helped patients get more insured test strips per day which can these patients gain better control of blood glucose levels Better health outcomes for children under 18: Our data supported a change in ADA guidelines for HbA1c goals for pediatric patientswhich may help reduce long-term complications Less fingersticks: our data supported the FDA decision to expand Dexcom continuous glucose monitoring (CGM) labelingallowing people to safely and confidently use their CGM systems to make insulin decisions while substantially reducing daily fingersticks Access to life-changing devices: our data supported the Center Continue reading >>
For People With Type 1 Diabetes (t1d)
The Herbert Family Program for young adults with t1d The program focuses on meeting the unique needs of young adults with t1d (ages 18-30). It addresses the financial, psychological, social and physical aspects of type 1 diabetes that challenge not only the patient but also their family and support networks. Services available: Social opportunities to meet and interact with others who have type 1 diabetes Individual and group counseling following consultation Insurance and community resource information Diabetes education including diabetes self-management education, meter pump and sensor training and management and medical nutrition therapy Preconception, pregnancy, and post-natal counseling and education Psychological healthy and support by a licensed clinical social worker If you are interested in the Herbert Family Program and/or our events please also visit us on Facebook. T1D event calendar If your child has T1D please visit our partner the PADRE Foundation for events and news. Continue reading >>
Top 10 Online Resources For People With Diabetes
Top 10 Online Resources for People with Diabetes Online communities, networks, and publications can be a great source of information for both people newly diagnosed with diabetes, and also for people who have been living with diabetes for a while. Below are some of our favorite websites and online resources for finding support and learning about diabetes. This online magazine features insights on everything diabetes-related including lifestyle, products & tech, recipes, nutrition, and overall health. We love the articles here and how diverse the content is. Some of our favorite posts include: Emergency Preparedness Guide for People with Diabetes diaTribe is an online publication with articles geared at helping peoplemake sense of diabetes.The site features resources for Type 1 and Type 2 Diabetes, and discusses everything from mental health to recipes to technology products. Some of our recent favorite articles include: Since 2004, dLife has been a platform for people to more about diabetes and connect with other diabetes consumers, patients, and caregivers. Theyre articles and resources are highly comprehensive, including the following resources: JDRFis the leading global organization funding type 1 diabetes (T1D) research. Their organization does incredible work in the community, hosting a myriad of local events. Apart from the research they fund, they have a highly comprehensive compendium of resources and informational documents. Some of our favorite resources are: T1D Connection Program : Get support and connect with a volunteer and discuss your questions and connect with the T1D community at JDRF. Online Diabetes Support Team : Ask and get answers to all your T1D questions from JDRF volunteers. T1D Toolkits : Resources and advice on multiple facets of T1D. The Jo Continue reading >>
Organizations & Support Groups
Need Financial Help with U.S. Diabetes Supplies and Medications? Here is a website with information about programs and resources that may help. Click Here! JDRF is the leading global organization focused on type 1 diabetes (T1D) research. The goal of JDRF research is to improve the lives of all people affected by T1D by accelerating progress on the most promising opportunities for curing, better treating, and preventing T1D. ADA We lead the fight against the deadly consequences of diabetes and fight for those affectedby diabetes. Check out their Safe At SchoolProgram glu We are a type 1 diabetes community who is accelerating promising research by seeking answers, sharing wisdom and offering support. Students With Diabetes aims to create a community and connection point for young adults with diabetes ages 18-30 on both college campuses and in local communities across the country. diabetes hands foundation Diabetes can be a very isolating disease, so we provide platforms where people with diabetes and their loved ones can connect and have an open dialog about their experiences with this chronic condition. Children with Diabetes The online community for kids, families and adults with diabetes. Connected in Motion We are people with T1D who share a vision: to create a culture of support & engagement in diabetes self-management through peer-based experiential diabetes education, sport, and outdoor adventure. (Based in Canada) ConsumerSafety.org is an information and news organization focused on health and safety topics. They provide information on health conditions like Diabetes, as well as recalls for products, medical devices and drugs, and relevant news. ConsumerSafety.Org works with experts to maintain a high level of information quality, to help readers like you stay i Continue reading >>
Getting Started: A Resource Guide For Pregnant Women With Diabetes
Getting Started: A Resource Guide for Pregnant Women with Diabetes by Carey Finn | Nov 13, 2017 | diabetes resources , pregnancy and diabetes | 0 comments Whether diagnosed with diabetes 20 years ago or just this morning, there are times that we all need a bit of help and guidance. Type 1 and Type 2 diabetes are conditions that come with a very real set of challenges these include keeping track of treatment regimens, discovering new technology, staying abreast of research, assembling a team of medical support specialists, and living a full and normal life in between. It can be rather daunting especially when youre starting a family too. There are myriad questions and concerns, and it may feel like nobodys speaking your language. Many pregnant women with diabetes struggle to find the resources and support they need to manage their unique situation. To make things easier, weve put together a kind of roadmap to guide your journey to building knowledge and community. Here are some of the resources you might like to look at along the way. The internet is vast and so full of facts (and falsities) that it can be quite a job to sift through them. For pregnant (or hoping to be pregnant) women with diabetes, with so much at stake, it is especially important to find safe, reliable sources of information. Top picks for authentic online sources of facts about diabetes and pregnancy include NHS Choices, NICE.org.uk, Patient.info and Diabetes.org.uk. NHS Choices is a user-friendly database of quick facts, patient education and tips for self-care, designed to be accessible to everyone. It has entries on Type 1 and Type 2 diabetes, as well as gestational diabetes , and also a short general section on diabetes and pregnancy . These are great as foundational research, but you might find Continue reading >>
Kids With Diabetes Resources
Information for Parents: Learning About Diabetes – provides visitors and health care professionals with simply written information on diabetes care. They try to use art and design in novel ways to help readers better understand diabetes. About Kids Health – Children health-related resources from the Hospital for Sick Children of Toronto Canada. They offer a very wide spectrum of thorough information on children physical and mental health issues. For information on Juvenile Diabetes in infants, toddlers, and preschoolers, please refer to this link. Healthychildren.org – This website offers a great compilation of information by American Academy of Pediatrics. Here you will a lot of information about children’s health issues, childcare, and family well-being. For parents who have a busy life schedule, this website offers an audio playback function so that you can listen to the information while juggling with other duties. And to make the information available to Spanish speaking parents, all articles on this website can be translated into Spanish with one click of a button. For general information on Juvenile Diabetes, please click on this link. For information on Diabetes treatments, please click on this link. The Bump – A website catered to pregnant mothers and new parents. It covers topics related to pregnancy, baby and toddler care. ADA For Parents & Kids – The American Diabetes Association focuses on everything related to Diabetes. This area of org is catered specially to parents whose children have recently been diagnosed with Diabetes. Children with Diabetes – Offers a tremendous amount of information for children and parents about Diabetes. A Sweet life: The Diabetes Magazine – a great source of information on the latest news of Diabetes KidsHealth Continue reading >>
