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Amy Tenderich, Founder Of Diabetes Mine, On Thinking Like A Patient

Amy Tenderich, Founder Of Diabetes Mine, On Thinking Like A Patient

A few months after Novo Nordisk gained FDA approval for its type-2 diabetes drug, Victoza, in January of 2010, Amy Tenderich sat down to write a review of the product on her blog, Diabetesmine.com . She quickly covered the drugs vital statsVictoza is an injectable glucagon-like peptide-1 designed to stimulate insulin secretion when high blood sugar is presentand then moved on to address the questions she knew would concern potential users: What type of patient would it benefit? How did it stack up against its competitor, Byetta? What were its side effects? What were its potential risks? What would happen when users combined Victoza with their usual oral anti-diabetes drugs? To answer these questions, Tenderich referred to expert sources and also sought input from her physical and online communitiesshe talked to her own endocrinologist as well as a web contact named Raymond, living with the disease in England. Soon, though, what had been a simple blog post turned into something else altogether: one by one, site visitors shared their own questions and experiences, and by October 21 of this year, they had posted 990 commentsmaking the page into the default user forum for the drug. And thats the beauty of blogging, as Tenderich sees it. Connecting online, she says, allows you to have this very personal, in-the-trenches perspective. Tenderich knows the trenches. Once a Silicon Valley technology writer, she was diagnosed in 2003 with type 1 diabetes, a disease about which she knew next to nothing. Looking to the web for guidance, she found a disconcerting lack of reliable information: no social networks; no blogs; no way to connect with patients other than those unwieldy chat forums and listserves we all remember with a sort of fond derision. At that time, it was sort of lik Continue reading >>

Annual Innovation Summit

Annual Innovation Summit

After four amazing years of hosting our revolutionary open innovation competition, the DiabetesMine Design Challenge , we launched a new chapter in our efforts to bring innovative thinking to the diabetes community: we hosted the first annual DiabetesMine Innovation Summit at Stanford University School of Medicine in Palo Alto, CA, in Fall of 2011. This intimate, invitation-only event is an unprecedented gathering of the various stakeholders involved in creating tools for life with diabetes: informed patient advocates, device designers, pharma marketing and R&D leaders, regulatory experts, clinicians, mobile health experts, web visionaries, experts from venture capital investment and innovation, and more. Over the past seven years, this Summit has helped kick off a new era of collaboration among these groups, and ignite a revolution in the world of designing tools for diabetes primarily by fostering best practices for keeping the actual users of these solutions (us patients!) central to the process. On Friday, Nov. 17 we held our 7th annual DiabetesMine Innovation Summit ( #dbminesummit17) at Stanford School of Medicine this year with a theme of Problem-Solving Our Healthcare. That is, given how healthcare has become so politicized and gridlocked of late, we chose to highlight novel problem-solving approaches in each of these areas, to inspire us all to go further: What a wonderful, important conference focused on real-life, pragmatic opportunities to improve patients lives! This is one of the best events weve been to in our 14 years of serving the diabetes community. Ive already connected with several of the attendees in the last week and hope to continue to problem-solve our healthcare together. John Henry, T1 advocate and founder of MyCareConnect Can you focus an en Continue reading >>

Diabetes Mine Interview About Living With T1d In Japan

Diabetes Mine Interview About Living With T1d In Japan

Diabetes Mine interview about living with T1D in Japan Diabetes is getting cured. JDRF, the leading global T1D research organization, is getting closer... but they need donations to continue. Give to JDRF and help 70-130 reach its fundraising goal of $2,500. So far, readers have given $690. Click to increase that number! Many thanks to the excellent Mike Hoskins of DiabetesMine.com for interviewing me about living in Japan with diabetes, and about my recent Diabetic Osaka A to Z video project , wherein I visited twenty six places in and around Osaka, Japan and got selfies with my blood sugar machine, all with readings between 70 and 130. DiabetesMine is now part of Healthline.com; the article has been moved over to the new site and a new URL. The link on this page is goodas of this writing. The article is called Living & Inspiring with Type 1 Tonyo-byo in Japan . Heres a sample: After visiting his dad in Florida earlier this year, Jeremy came up with a very cool D-Advocacy idea that combines photos, video, social media, and blood sugar management (!) to not only inspire PWDs to check their blood sugars, but also to teach people about the very interesting places hes visited in that part of Japan. I use and recommend Amazon for stuff like diabetes travel gear. Click here to see why. Im glad the project is reaching more people. It was fun to do, and I hope that it resonates with diabetics who need a little inspiration to control their BGs a little better. Life is better when you try to control your diabetes you end up in far more interesting places. Thanks to Mike and Amy from DiabetesMine for doing this. Share your travel stories, give advice, or ask a question in the comments section . Written by Jeremy on August 2, 2013 (updated May 17, 2016) in the category Press . Je Continue reading >>

Amy Tenderich - Ahip

Amy Tenderich - Ahip

Founder and Editor-in-Chief, DiabetesMine; Editorial Director, Diabetes and Patient Advocacy, Healthline Networks, Inc. Amy Tenderich is a journalist, blogger, patient advocate, and consultant who started DiabetesMine.com after her diagnosis with type 1 diabetes in 2003. Her site has become a leading online destination for people with diabetes and one of the top award-winning health blogs around the country and the world. The site became part of San Francisco-based Healthline Media in January 2015. Amy is the co-author, along with Dr. Richard Jackson of the Joslin Diabetes Center, of Know Your Numbers, Outlive Your Diabetes a unique motivational guide to the 5 key medical tests that everyone with diabetes should have and monitor regularly. She has made it her personal mission to spur innovation in diabetes care that actually originates with patients. She penned an Open Letter to Steve Jobs in 2007 that went viral, developing into an international crowdsourcing competition called the DiabetesMine Design Challenge. The competition was underwritten by the California HealthCare Foundation, and supported by IDEO, a leading design firm with close ties to Stanford University. The competition culminated in the DiabetesMine Innovation Summit, a unique annual gathering of diabetes stakeholders that Amy organizes and hosts at Stanford University School of Medicine and UCSF, and the bi-annual DiabetesMine D-Data ExChange technology forum. Amy is a regular speaker and guest lecturer on patient-centered design and related patient advocacy topics. Continue reading >>

Amy Tenderich Diabetes Mine

Amy Tenderich Diabetes Mine

Copyright 2001-2018 Pump Wear 1-866-470-PUMP All property and contents of web site are the property of Pump Wear Inc. All Rights Reserved. Join Our Mailing List | Order Brochures | Contact Us Pump Wear specializes in Diabetes Insulin Pumps and diabetes accessories for kids, teens and adults. If you need a Diabetes Insulin Pump, a Pump Pak or Diabetes Pump Accessories, you are in the right place! Whether you or your child need an insulin pump, the change will necessitate a lifestyle adjustment. You can find great diabetes videos and diabetes accessories like insulin pump cases, insulin pump paks, and insulin pump clothing to make the transition less stressful. Pump Wear is here to support you and your family as you adjust to changes in health needs. When you need an insulin pump packs for a toddler there are a lot of considerations. You will need to have insulin pack friendly clothing and recourses to help you adjust. Pump Wear is a great resource for your family, our store offers insulin pump cases for teens, insulin pump accessories for adults and fashion friendly insulin pump pouches.You can choose from Insulin pump cases with photos, sports, animals and fun designs. You can even find insulin pump cases with artwork for the holidays. Whether you want an Insulin pump case that hide your pump or an insulin pump cases that shows off your pump, you can find a great selection at Pump Wear! If you wear a Medtronic insulin pump, an Animas insulin pump, a Tandem insulin pump, or an Omnipod insulin pump, you will find ways to wear your pump comfortably with diabetes pump accessories. You can make a fashion statement with your pump accessories that fits your personality. Having a comfortable and secure system for maintaining your insulin pump is very important. For children an Continue reading >>

Aade Embracing The Diabetes Online Community

Aade Embracing The Diabetes Online Community

And just this past week, issuing a Special Report titled, " Educators and Peer Support Communities: Working Together for the Good of People with Diabetes " that details their goals and collaboration ideas You can access the full PDF version of this AADE-DOC Report here . This report is the result of a big brainstorming session AADE held at its Chicago headquarters in mid-October of last year. Seven of their leaders hosted a group of nine representatives of PWD communities, including myself from DiabetesMine, Cherise Shockley of DSMA, Christel Aprigliano of DPAC, Anna Norton of DiabetesSisters, Alice Moran of the diaTribe Foundation, and more. Some may argue that this "selected" group of advocates does not sufficiently represent the whole diabetes community, and that is certainly true. But believe you me, we've all worked very hard to earn our seat at the table, and we did our very best to represent patients' needs, challenges, and frustrations -- all of which are outlined in the report. We even made the point about broadening representation repeatedly ourselves, prompting the AADE to include the statement, "One of the outcomes of the meeting was the realization that the term DOC (Diabetes Online Community) was not an accurate descriptor for groups represented. Each of the groups used a variety of methods to engage with their audiences, including in-person meetings. Therefore efforts will be made to transition to the name Peer Support Communities (PSC)." "The group was asked to look beyond current restrictions and constraints in order to visualize what an ideal relationship might look like between DEs (diabetes educators), PWDs, and PSCs," the report notes, with the aim to achieve: A shared view of the role of diabetes educators and peer support, and the value it provid Continue reading >>

Diabetes Mine Founder To Speak About Technology-enabled Patient Engagement At Healthtech Innovation Conference

Diabetes Mine Founder To Speak About Technology-enabled Patient Engagement At Healthtech Innovation Conference

Diabetes Mine founder to speak about technology-enabled patient engagement at HealthTech Innovation Conference Home / Uncategorized / Diabetes Mine founder to speak about technology-enabled patient engagement at HealthTech Innovation Conference Diabetes Mine founder to speak about technology-enabled patient engagement at HealthTech Innovation Conference At the upcoming Health Technology Forum Innovation Conference on April 19th in San Francisco, Amy Tenderich, Founder & Editor in Chief of Diabetes Mine , will participate in a panel discussion on the topic of technology-enabled patient engagement. Tenderich will join other well known panelists including Aetna executive Jan Oldenburg, who recently edited and led the publication an HIMSS sponsored study titled Engage: Transforming Healthcare through Digital Engagement, Kyra Bobinette, MD & MPH, Senior Design Instructor at the Stanford Behavioral Design Lab, and Dr. Laura Esserman, Professor UCSF School of Medicine on a panel moderated by Neil Versel, HIT Journalist Universal Media. A shocking, 25.8 million people in the US, about 8.3% of the population, have diabetes. Perhaps you or someone you love, suffers from this chronic disease, that requires constant attention. Perhaps you have often browsed the internet for answers to many questions regarding the disease and are yet unsure of some of the answers. For instance, Do you know that exercise first raises blood sugar, before the sugar goes down? Do you know that the annual cost associated with diabetes in 2012, was a staggering $245 billion? Do you know that research is under way with the Hypoglycemia-Hyperglycemia Minimizer System or HHM for short? This is a mockup pancreas system comprising of an insulin pump, continuous glucose monitor, and control software algorithm Continue reading >>

Diabetesmine | Mobihealthnews

Diabetesmine | Mobihealthnews

This week popular diabetes blog and community, DiabetesMine announced the winners of its annual 2011 DiabetesMine Design Challenge. Started in 2008, the Design Challenge tasks participants with finding creative new ways to improve the lives of those with diabetes. Perhaps unsurprisingly, one of this year's winners developed an iPhone/iPad app.The three grand prize winners, who each received $7,... The California Healthcare Foundation (CHCF) just published a must-read report called Participatory Health: Online and Mobile Tools Help Chronically Ill Manage Their Care, by health economist and management consultant Jane Sarasohn-Kahn."Many of the entrants into this market are from outside traditional health organizations," Sarasohn-Kahn writes in her conclusion. "Health Providers, institutions... Wireless biometric sensors, connected health devices, mobile phones and online portals hold the promise of automating the management of chronic diseases. Some service providers, however, aim to do no such thing.If you truly automate the process of measuring a patient's blood pressure, for example, do you miss the key opportunity to engage that patient in their care regimen? If a chronic... During the opening plenary session at the Health 2.0 conference this afternoon, Dr. Alan Greene, Chief Medical Officer of A.D.A.M. wove historical trivia with mixed metaphors to explain Health 2.0:The first two presidents of the U.S., Washington and Adams, never shook hands while president, instead they bowed, Greene said. U.S. citizens similarly bowed back. President Thomas Jefferson changed... Continue reading >>

Diabetesmine D-data Exchange

Diabetesmine D-data Exchange

The DiabetesMine D-Data ExChange is a gathering of key innovators creating applications and platforms that leverage diabetes data to produce healthier outcomes, reduce healthcare costs, increase transparency to policy decision-makers and care teams, and improve prospects for patient engagement. It was created as an offshoot of our annual DiabetesMine Innovation Summit in 2013, and in response to a groundswell of interest, this catalyst for the #WeAreNotWaiting movement has now become a bi-annual happening. The most recent DiabetesMine D-Data ExChange took place on Nov. 16, 2017, at Stanford School of Medicine, in association with our annual Innovation Summit happening there. This incredible 8th gathering of leading diabetes data and device experts, health data innovators, patient activists and regulatory experts featured: Read all about the talks and panels here . Prior to that, our June 2017 event in San Diego brought together a fantastic group of influencers in the #DData world. This summer forum focused on how industry is embracing patient innovation, bringing a significant paradigm shift. Read all about MIT Innovation Scholar Eric von Hippels keynote and more here . The DiabetesMine D-Data ExChange events are supported by our valued industry sponsors, and content is created with the help of our friends at Tidepool and an Advisory Committee made up of entrepreneurs and representatives from Glooko, Livongo, One Drop, Timesulin and Johnson & Johnson Diabetes. If youre interested in sponsorship, or becoming otherwise involved, please email us here. Continue reading >>

Diabetesaliciousness 2007 - 2018

Diabetesaliciousness 2007 - 2018

My POV: The 2015 DiabetesMine Innovation Summit The holidays made for a crazy schedule. Here are my thoughts onat the 2015 DiabetesMine Innovation Summit. Ive followed the DiabetesMine Innovation Summit online since it's inception, and this year (thanks to receiving a scholarship from DiabetesMine,) I was able to fly cross country and attend the 2015 DiabetesMine Innovation Summit, on November, 20th, 2015. The summit brought together all the key game changers in the diabetes world in all dimensions. Patient Advocates who live with D 24X7, designers of current and future devices, clinicians, R&D, Pharma Marketing, regulatory, groovy tech gurus,and more! The agenda was jam packed and much of the focus centered on the major challenges of living with diabetes ( see amys slides, ) and usability factors being KEY. I LOVED that D patient challenges and usability in design took center stage! Topics addressed harnessing the creativity of patients; behavioral aspects of living with a D 24X7, patient life hacks, design aspects of D products, industry embracing the patient experience, getting the FDA onboard, and D tech, just to name a few. So much was discussed in what seemed like a very short amount of time and my head was spinning andstillis, but in a great way! And as the day flew by, my mind went back to the original Roche Diabetes Social Media Summit in 2009 - and how industry was hesitant to engage with patients and all things Social Media. Now, 6 short years later, things have changed dramatically and for the better. Patients and industry are working together and our diabetes voices are being heard! Some of the Speakers many talking points that have stuck in my head long after the conference ended, include: Chief Technology Officer of the U.S. Department of Health and Huma Continue reading >>

Diabetes Mine Patient Voices Contest

Diabetes Mine Patient Voices Contest

Diabetes Mine has launched a new Patient Voices Contest in which e-Patients and hands-on caregivers can voice their concerns about diabetes device design.To enter, patients and caregivers must submit a 2-3 minute video describing what they would like to see from diabetes device makers, and what issues they have with the current technology. The prizes for 10 winners of this exciting new contest arean all-expense-paid trip to the 2012 DiabetesMine Innovation Summit at Stanford University in Palo, CA (taking place Nov 16, 2012), and anew iBGStar from Sanofi, the first-ever plug-in glucose meter for the iPhone and iTouch. The 10 winners selected will attend this years DiabetesMine Innovation Summit as delegates from the diabetes community. Theyll have the opportunity to share their ideas and concerns with Pharma R&D, product designers, mobile health experts, investors, gaming experts, regulatory folks and other stakeholders. The deadline for entries is June 12, 2012. Were very excited to announce that we recently incorporated ASweetLife and related projects under a new nonprofit media organization, Diabetes Media Foundation (DMF), devoted to disseminating information about, and generating Continue reading >>

Welcome To Diabetesmine At Healthline.com!

Welcome To Diabetesmine At Healthline.com!

Welcome to DiabetesMine at Healthline.com! Welcome to DiabetesMine at Healthline.com! Email addresses will not be shared with 3rd parties. See privacy policy We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. We are delighted to welcome you to the refreshed and updated DiabetesMine blog here at Healthline. For those of you who don't know us, we are a patient-led publication and advocacy team that's been around for 10 years. We're a group of people living with diabetes (we use PWDs for short), just like many of you. We were never satisfied with the official information we found online about our illness, so decided to use our collective backgrounds in journalism and communications to create our own news site, by and for patients. We publish daily, and call this site a diabetes newspaper with a personal twist. We hope youll take some time to explore the Mine, founded in early 2005, which features a ton of rich information* on everything from breaking diabetes news to book reviews (with giveaways!), to product reviews, analyses of headlines and research, interviews with luminaries, feature stories on inspiring people and advocacy projects, stories from loved ones of diabetics and accounts of living with diabetes from around the world. Welcome to a news source and friendly destination that will provide straight talk on diabetes you wont find anywhere else. Amy Tenderich -Founder & Editor of DiabetesMine.com living in the San Francisco Bay Area with type 1 diabetes since 2003, and now a nationally known patient advocate living in Central Indiana, with type 1 since age 5 in 1984 (also the son of a type 1 mom), and a newspaper man with journalism coursing through his veins livi Continue reading >>

Diabetes Care In The Hospital: It Aint Pretty (diabetes Mine Blog Post)

Diabetes Care In The Hospital: It Aint Pretty (diabetes Mine Blog Post)

Diabetes Care in the Hospital: It Aint Pretty (Diabetes Mine blog post) I have had a bad experience with hospitals, too. I went to the ER for a blood sugar of 380 one day when I didn't realize that my cannula kinked under my skin and my blood sugar wasn't going down. When I told them I was a T1, they stared blankly at me and then told me to wait. What seemed like forever later, a nurse came in and said she was going to give me 10 units of insulin. I told her I couldn't take that much or I would severely go low. She said that was protocol based off of their sliding scale. After arguing with her for a few minutes, I finally convinced her to only give me 2 units. They then told me that I was going to have to stay overnight for observation, but low and behold, my blood sugar came down to normal after the 2 units and I was let go. That experience wasn't terrible and definitely could have been worse, but it really scared me at how little the doctors and nurses knew about T1. And it REALLY scares me to think about if I were in a situation where I couldn't control myself, I don't have trust that I would be well taken care of. This whole situation cries out for some major reeducation of our frontline medical professionals. The fact that some doctors and nurses don't understand the critical difference between T1 and T2 just astounds me. And they don't even to appear to understand the limit of their knowledge! They don't know what they don't know. Perhaps we need an initiative headed by our advocate agencies like the JDRF to spearhead this program. Every working medico worth their salt should be conversant in I:C, ISF, basal/bolus regimens, and how an insulin pump works. They should understand the nature of various insulins as well as their properties like onset, peak, and durati Continue reading >>

Best Diabetes Blog Posts Of January 2018 | Diabetesmine

Best Diabetes Blog Posts Of January 2018 | Diabetesmine

Around the Diabetes Blogosphere: Hello, 2018! Written by DiabetesMine Team on January 30, 2018 Welcome to our monthly roundup of outstanding blog posts from across the Diabetes Online Community (DOC). This is the first of2018, where we share our faves for January -- in no particular order. As always, we'd love to hear any thoughts you have on these selected posts or any others that caught your eye. Leave a comment below, and be sure to keep our DOC Roundup in mind as we move forward through the year, in case you'd like to nominate any posts you loved. If so, email us here . Remember My Diabetes Secret , that place online where people can anonymously share their honest feelings related to diabetes? Well, this one caught our eye about not being able to fall asleep because of D-Fears... yep, we hear ya, whoever you are! You may have seen mention that this month, the American Diabetes Association sent out a fundraising email with a controversial subject line that drew the ire of many in the DOC, with Kerri Sparling over at SixUntilMe representing by pointing out that she prefers messages of hope instead of scare tactics. Fortunately, the ADA saw the error of its ways and promises to do better . who we've just found in the DOC blogosphere. He's in the professional food world, and we had fun reading his take on personal food habits: I Eat What I Want . Speaking of food, Kate over at Sweet Success writes about a recent CDE visit where she had to seek Permission to Eat. Ugh, not cool. Diabetes devices can generate a lot of data, and sometimes that boils over into overload... Molly shares her insights on that over at her Hugging the Cactus blog. When I Am Weak, He Is Strong ... Do. Not. Miss. This one by type 1 peep Brittany at The Diabetic Journey blog. Words certainly have th Continue reading >>

Behind The Scenes Of Medical Blogs: Diabetes Mine

Behind The Scenes Of Medical Blogs: Diabetes Mine

Behind the Scenes of Medical Blogs: Diabetes Mine Behind the Scenes of Medical Blogs: Diabetes Mine Ive already presented several famous medical bloggers to you. My aim is to get my readers closer to these quality blogs and the bloggers as well. Id like to convince more and more health professionals/people interested in medicine to create their own blogs by providing interesting behind-the-scenes interviews. The eleventh blogger in this series is Amy Tenderich, the author of DiabetesMine.com , a blog about diabetes. Youve been blogging for more than 3 years now. How can you maintain your blog? How much time does it take? DiabetesMine.com has kind of taken over my life, for sure. I now post every weekday, and sometimes on weekends, too. Its very time-consuming. But its also therapeutic, because the blogging has become intertwined with my diabetes care and my support community. I feel like I couldnt stand the diabetes if I didnt have that. How do you find information for your blog? You certainly read other blogs, journals but do you use RSS reader? How many blogs do you track? Of course I peruse hundreds of blogs and medical sites. Im a big fan of the Bloglines prescription service. Honestly, I could hire an assistant just for tracking all the health and diabetes-specific information on the web. But what I choose to write about is really mostly the stuff that just catches my eye, or that I believe will truly impact peoples lives. You got special mention in Medgadgets Weblog Awards; youve been featured in several magazines. Im pretty sure you are one of the most respected ambassadors of diabetes. What do you think about it? Thats very kind of you. In fact, theres a very rich community of patient bloggers out there. I think we all add value with our individual strengths an Continue reading >>

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