Diabetesmine

Report On The 2017 Diabetesmine Innovation Summit

We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. On Friday, Nov. 17 we held our 7th annual DiabetesMineInnovation Summit ( #dbminesummit17 ) at Stanford School ofMedicine this year with a theme of Problem-Solving Our Healthcare. That is, givenhow healthcare has become so politicized and gridlocked of late, we choseto highlight novel problem-solving approaches in each of these areas, toinspire us all to go further: Support Services for PWDs (people with diabetes) Everyinvited speaker and panelist was chosen because they honed in on a specifichealthcare or diabetes care problem, and created an innovative fix. With this post, wed like to walk you all through theprogram, with links to presentation slides wherever possible -- starting with my own opening remarks that set the stage. Brian Hoffer, Founder of Gestalt Design, kicked off the daywith an inspirational keynote about Transforming Healthcare Through Design. He gave insightful examples from three companies hesworked with: Pill Pack , the $100Mcompany he helped found with the aim of solve complexity of managingrefilling and taking multiple medications; EyeNetra , a suite of devices and aplatform for remote care in optometry; and Project Leap, a new online resourcehes involved in creating to help people with type 1 diabetes overcomeemotional barriers to adopting modern diabetes devices (!) That final project has received some funding from theHelmsley Trust, and will culminate in a new site called DiabetesWise.org thatwill allow T1Ds to share their experiences with diabetes tools and technology.Just up our alley like our Test Kitchen videoreview hub idea! Some key takeaways Brian presented on successful design forhealth Continue reading >>

Aade Embracing The Diabetes Online Community

And just this past week, issuing a Special Report titled, " Educators and Peer Support Communities: Working Together for the Good of People with Diabetes " that details their goals and collaboration ideas You can access the full PDF version of this AADE-DOC Report here . This report is the result of a big brainstorming session AADE held at its Chicago headquarters in mid-October of last year. Seven of their leaders hosted a group of nine representatives of PWD communities, including myself from DiabetesMine, Cherise Shockley of DSMA, Christel Aprigliano of DPAC, Anna Norton of DiabetesSisters, Alice Moran of the diaTribe Foundation, and more. Some may argue that this "selected" group of advocates does not sufficiently represent the whole diabetes community, and that is certainly true. But believe you me, we've all worked very hard to earn our seat at the table, and we did our very best to represent patients' needs, challenges, and frustrations -- all of which are outlined in the report. We even made the point about broadening representation repeatedly ourselves, prompting the AADE to include the statement, "One of the outcomes of the meeting was the realization that the term DOC (Diabetes Online Community) was not an accurate descriptor for groups represented. Each of the groups used a variety of methods to engage with their audiences, including in-person meetings. Therefore efforts will be made to transition to the name Peer Support Communities (PSC)." "The group was asked to look beyond current restrictions and constraints in order to visualize what an ideal relationship might look like between DEs (diabetes educators), PWDs, and PSCs," the report notes, with the aim to achieve: A shared view of the role of diabetes educators and peer support, and the value it provid Continue reading >>

New Apps And Devices At Diabetesmines D-data Exchange And Innovation Summit

New Apps and Devices at DiabetesMines D-Data Exchange and Innovation Summit Whats new in smart pens and caps for capturing injection doses? Plus, two cool new health apps with built-in artificial intelligence DiabetesMine hosted their annual D-Data Exchange and Innovation Summit at Stanford University, highlighting some of the latest diabetes technology. A panel on smart pens was the star of the meeting with InPen, Gocap, and Bigfoot all sharing updates on their vision. New smartphone apps also drew our attention with cool uses of artificial intelligence to make diabetes management more convenient. Smart pens incorporate digital technology into insulin pens or caps so that data can be collected passively on insulin doses, timing, and insulin on board. Right now, only pump users can easily track such data digitally smart pens aim to fill this gap. The Bluetooth-enabled, reusable InPen tracks insulin doses and automatically sends the data to a paired app. The app, in addition to tracking doses and timing, has a mealtime dose calculator and automatic insulin-on-board tracking. The reusable pen lasts a year, requires a prescription, does not need recharging, and is compatible with Novolog and Humalog prefilled cartridges. Approved by the FDA in 2016, InPen is set to launch this month via mail order pharmacy and in other select pharmacies. On pricing, company founder Sean Saint shared the following: About half of insurance plans are covering the InPen, and copays are typically ranging from $0 to $75 (the amount you pay out of pocket). For those without insurance, or whose insurance plans dont cover InPen, the pen will cost $549 with a coupon since the pen lasts for a year, that comes out to $45.75 per month. Users will also receive a free AgaMatrix Bluetooth-enabled blood g Continue reading >>

Diabetes Mine Interview About Living With T1d In Japan

Diabetes Mine interview about living with T1D in Japan Diabetes is getting cured. JDRF, the leading global T1D research organization, is getting closer... but they need donations to continue. Give to JDRF and help 70-130 reach its fundraising goal of $2,500. So far, readers have given $690. Click to increase that number! Many thanks to the excellent Mike Hoskins of DiabetesMine.com for interviewing me about living in Japan with diabetes, and about my recent Diabetic Osaka A to Z video project , wherein I visited twenty six places in and around Osaka, Japan and got selfies with my blood sugar machine, all with readings between 70 and 130. DiabetesMine is now part of Healthline.com; the article has been moved over to the new site and a new URL. The link on this page is goodas of this writing. The article is called Living & Inspiring with Type 1 Tonyo-byo in Japan . Heres a sample: After visiting his dad in Florida earlier this year, Jeremy came up with a very cool D-Advocacy idea that combines photos, video, social media, and blood sugar management (!) to not only inspire PWDs to check their blood sugars, but also to teach people about the very interesting places hes visited in that part of Japan. I use and recommend Amazon for stuff like diabetes travel gear. Click here to see why. Im glad the project is reaching more people. It was fun to do, and I hope that it resonates with diabetics who need a little inspiration to control their BGs a little better. Life is better when you try to control your diabetes you end up in far more interesting places. Thanks to Mike and Amy from DiabetesMine for doing this. Share your travel stories, give advice, or ask a question in the comments section . Written by Jeremy on August 2, 2013 (updated May 17, 2016) in the category Press . Je Continue reading >>

2015 Diabetesmine Patient Voices Contest

Would you like to attend the 2015 DiabetesMine Innovation Summit in Palo Alto, California, on a full scholarship? Then be sure to participate in this years Patient Voices Contest, run by DiabetesMine.com. In an effort to ensure that the voices of people with diabetes are heard by the Powers That Be, the site is asking readers to submit a diabetes life hack, along with filling out a standard application form , for the opportunity to lend their voices at this years Summit. The hacks should be procedures or actions that solve a problem, simplify a task, or reduce frustration in your everyday life with diabetes. (An example includes using an earthquake alert app to amplify the sound of overnight continuous glucose monitor alarms.) Preference will be given to entrants that supply photos, video, or other multimedia materials illustrating their hacks. The top entrants as selected by the DiabetesMine team will receive a scholarship covering airfare, two nights in a hotel, and meals to attend the 2015 DiabetesMine Innovation Summit at Stanford University in Palo Alto, California (taking place on November 20, 2015), where they will act as delegates for the diabetes community. They will have the opportunity to meet with representatives from product design, pharmaceutical, and mobile health companies, as well as regulatory agents, clinicians, investors, entrepreneurs, and more. Entries will be accepted until April 24 at 5 PM PST, with winners being announced in late May. Full instructions for submission are available on DiabetesMine. This blog entry was written by Web Editor Diane Fennell. Disclaimer of Medical Advice: You understand that the blog posts and comments to such blog posts (whether posted by us, our agents or bloggers, or by users) do not constitute medical advice or r Continue reading >>

Win A Full Scholarship To The 2017 Diabetesmine Innovation Summit

Win a Full Scholarship to the 2017 DiabetesMine Innovation Summit The 2017 Patient Voices Contest is currently open; winners will receive a full scholarship to attend the 2017 DiabetesMine Innovation Summit in Palo Alto What fresh ideas or initiatives could make a difference at the local level for living well with diabetes? What would make a difference for your diabetes or for someone you love who has diabetes? Share your ideas about how to act locally and make a difference by entering the DiabetesMine Patient Voices Contest , and you could be one of ten people selected to receive a fully funded scholarship to attend the 2017 DiabetesMine Innovation Summit in Northern California in November. Entries will be accepted until May 19. In their call for submissions, DiabetesMine asks, What contributions to innovation can we patients make without relying on the system? Applicants are asked to propose innovative ideas that could be implemented in your own backyard to help people with diabetes live better, less complicated and more fulfilling lives. DiabetesMine emphasizes that entries will be judged on both the passion expressed in the application, as well as the proposed solutions so be creative! Selected winners will receive a scholarship to attend the DiabetesMine Innovation Summit on Friday, November 17, 2017, at Stanford School of Medicine in Palo Alto, California. The scholarship covers the cost of air travel, two nights in a hotel, and meals. At the Summit, winners of the Patient Voices Contest will act as delegates, representing the voice of the diabetes community and sharing with pharmaceutical and insurance industry experts, regulatory leaders, healthcare providers, and more, the needs and goals of people with diabetes. This is a great opportunity to innovate and be Continue reading >>

Amy Tenderich, Founder Of Diabetes Mine, On Thinking Like A Patient

A few months after Novo Nordisk gained FDA approval for its type-2 diabetes drug, Victoza, in January of 2010, Amy Tenderich sat down to write a review of the product on her blog, Diabetesmine.com . She quickly covered the drugs vital statsVictoza is an injectable glucagon-like peptide-1 designed to stimulate insulin secretion when high blood sugar is presentand then moved on to address the questions she knew would concern potential users: What type of patient would it benefit? How did it stack up against its competitor, Byetta? What were its side effects? What were its potential risks? What would happen when users combined Victoza with their usual oral anti-diabetes drugs? To answer these questions, Tenderich referred to expert sources and also sought input from her physical and online communitiesshe talked to her own endocrinologist as well as a web contact named Raymond, living with the disease in England. Soon, though, what had been a simple blog post turned into something else altogether: one by one, site visitors shared their own questions and experiences, and by October 21 of this year, they had posted 990 commentsmaking the page into the default user forum for the drug. And thats the beauty of blogging, as Tenderich sees it. Connecting online, she says, allows you to have this very personal, in-the-trenches perspective. Tenderich knows the trenches. Once a Silicon Valley technology writer, she was diagnosed in 2003 with type 1 diabetes, a disease about which she knew next to nothing. Looking to the web for guidance, she found a disconcerting lack of reliable information: no social networks; no blogs; no way to connect with patients other than those unwieldy chat forums and listserves we all remember with a sort of fond derision. At that time, it was sort of lik Continue reading >>

Best Diabetes Blog Posts Of January 2018 | Diabetesmine

Around the Diabetes Blogosphere: Hello, 2018! Written by DiabetesMine Team on January 30, 2018 Welcome to our monthly roundup of outstanding blog posts from across the Diabetes Online Community (DOC). This is the first of2018, where we share our faves for January -- in no particular order. As always, we'd love to hear any thoughts you have on these selected posts or any others that caught your eye. Leave a comment below, and be sure to keep our DOC Roundup in mind as we move forward through the year, in case you'd like to nominate any posts you loved. If so, email us here . Remember My Diabetes Secret , that place online where people can anonymously share their honest feelings related to diabetes? Well, this one caught our eye about not being able to fall asleep because of D-Fears... yep, we hear ya, whoever you are! You may have seen mention that this month, the American Diabetes Association sent out a fundraising email with a controversial subject line that drew the ire of many in the DOC, with Kerri Sparling over at SixUntilMe representing by pointing out that she prefers messages of hope instead of scare tactics. Fortunately, the ADA saw the error of its ways and promises to do better . who we've just found in the DOC blogosphere. He's in the professional food world, and we had fun reading his take on personal food habits: I Eat What I Want . Speaking of food, Kate over at Sweet Success writes about a recent CDE visit where she had to seek Permission to Eat. Ugh, not cool. Diabetes devices can generate a lot of data, and sometimes that boils over into overload... Molly shares her insights on that over at her Hugging the Cactus blog. When I Am Weak, He Is Strong ... Do. Not. Miss. This one by type 1 peep Brittany at The Diabetic Journey blog. Words certainly have th Continue reading >>

Diabetesmine: A Unique Diabetes Newspaper With A Personal Twist

Inquisitive, perhaps-just-a-tad overly analytical PWD based in San Francisco, CA. Diagnosed with Type 1 in May 2003. BA in Journalism, MA in Communication Studies. After living overseas and many years of PR/marketing work for high-tech companies in Silicon Valley, became a freelance writer and consultant in the health and diabetes industries (and full-time mom). Co-author of the patient guidebook, Know Your Numbers, Outlive Your Diabetes and founder of the DiabetesMine Design Challenge . Now a well-known ePatient advocate and frequent speaker at diabetes and health / social media events. Enjoys reading, cooking, aerobics, hiking, swimming, wine, weekend getaways, and spending time with her three spirited daughters. Her standing New Years Resolution since diagnosis: Enjoy Life. Diagnosed with type 1 at age 5 back in 1984, Mikes the son of a type 1 mom who was diagnosed at the same young age in 1958. Hailing from Metro Detroit and being a writer for most of his life, journalism has been a focus since middle school and has taken Mike to a variety of weekly, daily and specialty newspapers in both Michigan and Indiana. After finding the Diabetes Online Community in 2005, he eventually re-energized his own local advocacy and began personally writing about diabetes at The Diabetic's Corner Booth before merging his journalism and diabetes passions and joining DiabetesMine in May 2012. Loves spending time with his wife Suzi and their black lab Riley, while also indulging his history buff tendencies and exploring family ancestry in his free time. Columnist / Correspondent William Lee Dubois Diagnosed as an adult with type 1 in 2004. Employed as Diabetes Coordinator for the Pecos Valley Medical Center in New Mexico. One of the first 30 people ever to use Medtronics Guardian conti Continue reading >>

Diabetes Care In The Hospital: It Aint Pretty (diabetes Mine Blog Post)

Diabetes Care in the Hospital: It Aint Pretty (Diabetes Mine blog post) I have had a bad experience with hospitals, too. I went to the ER for a blood sugar of 380 one day when I didn't realize that my cannula kinked under my skin and my blood sugar wasn't going down. When I told them I was a T1, they stared blankly at me and then told me to wait. What seemed like forever later, a nurse came in and said she was going to give me 10 units of insulin. I told her I couldn't take that much or I would severely go low. She said that was protocol based off of their sliding scale. After arguing with her for a few minutes, I finally convinced her to only give me 2 units. They then told me that I was going to have to stay overnight for observation, but low and behold, my blood sugar came down to normal after the 2 units and I was let go. That experience wasn't terrible and definitely could have been worse, but it really scared me at how little the doctors and nurses knew about T1. And it REALLY scares me to think about if I were in a situation where I couldn't control myself, I don't have trust that I would be well taken care of. This whole situation cries out for some major reeducation of our frontline medical professionals. The fact that some doctors and nurses don't understand the critical difference between T1 and T2 just astounds me. And they don't even to appear to understand the limit of their knowledge! They don't know what they don't know. Perhaps we need an initiative headed by our advocate agencies like the JDRF to spearhead this program. Every working medico worth their salt should be conversant in I:C, ISF, basal/bolus regimens, and how an insulin pump works. They should understand the nature of various insulins as well as their properties like onset, peak, and durati Continue reading >>

Tech Meets Diabetes, Diabetes Meetstech

How Amy Tenderich Breaks Down Barriers between Technology, Healthcare Providers, andPatients Last year, Amy Tenderich from DiabetesMine invited Better s Founder and CEO, Rachael Norman, to speak at the 2017 DiabetesMine Innovation Summit. The experience was so amazing that we wanted to learn more about DiabetesMine, how health insurance impacts the diabetic community and why Amy isnt waiting. Amy Tenderich is a leading advocate for the diabetic community and one of the events Amy hosts is the annual DiabetesMine Innovation Summit. That was how she heard about Better. The 2017 conference theme was problem solving our healthcare, #WeAreNotWaiting and she was searching for companies developing new solutions to existing healthcare problems. Several people in the Stanford community mentioned this organization called Better who are doing this amazing platform to help people with their insurance claims and we were like, Amy has her own claim to fame. In 2007, Amy wrote an open letter to Steve Jobs that went viral. She called for Apple (and all of Silicon Valley) to apply the same design skills to medical devices that Apple devoted to its consumer products. She wrote that the devices the diabetic community had to live with were stuck in a bygone era, created in an engineering-driven, physician-centered bubble. If insulin pumps or continuous glucose monitors had the form of an iPod Nano, people wouldnt have to wonder why we wear our pagers to our own weddings, or puzzle over that strange bulge under our clothes. [] They (the medical device industry) have not yet grasped the concept that medical devices are also life devices, and therefore need to feel good and look good for the patients using them 24/7, in addition to keeping us alive. Jobs never replied so Tenderich took the l Continue reading >>

Welcome To Diabetesmine At Healthline.com!

Welcome to DiabetesMine at Healthline.com! Welcome to DiabetesMine at Healthline.com! Email addresses will not be shared with 3rd parties. See privacy policy We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. We are delighted to welcome you to the refreshed and updated DiabetesMine blog here at Healthline. For those of you who don't know us, we are a patient-led publication and advocacy team that's been around for 10 years. We're a group of people living with diabetes (we use PWDs for short), just like many of you. We were never satisfied with the official information we found online about our illness, so decided to use our collective backgrounds in journalism and communications to create our own news site, by and for patients. We publish daily, and call this site a diabetes newspaper with a personal twist. We hope youll take some time to explore the Mine, founded in early 2005, which features a ton of rich information* on everything from breaking diabetes news to book reviews (with giveaways!), to product reviews, analyses of headlines and research, interviews with luminaries, feature stories on inspiring people and advocacy projects, stories from loved ones of diabetics and accounts of living with diabetes from around the world. Welcome to a news source and friendly destination that will provide straight talk on diabetes you wont find anywhere else. Amy Tenderich -Founder & Editor of DiabetesMine.com living in the San Francisco Bay Area with type 1 diabetes since 2003, and now a nationally known patient advocate living in Central Indiana, with type 1 since age 5 in 1984 (also the son of a type 1 mom), and a newspaper man with journalism coursing through his veins livi Continue reading >>

Diabetes Mine Patient Voices Contest

Diabetes Mine has launched a new Patient Voices Contest in which e-Patients and hands-on caregivers can voice their concerns about diabetes device design.To enter, patients and caregivers must submit a 2-3 minute video describing what they would like to see from diabetes device makers, and what issues they have with the current technology. The prizes for 10 winners of this exciting new contest arean all-expense-paid trip to the 2012 DiabetesMine Innovation Summit at Stanford University in Palo, CA (taking place Nov 16, 2012), and anew iBGStar from Sanofi, the first-ever plug-in glucose meter for the iPhone and iTouch. The 10 winners selected will attend this years DiabetesMine Innovation Summit as delegates from the diabetes community. Theyll have the opportunity to share their ideas and concerns with Pharma R&D, product designers, mobile health experts, investors, gaming experts, regulatory folks and other stakeholders. The deadline for entries is June 12, 2012. Were very excited to announce that we recently incorporated ASweetLife and related projects under a new nonprofit media organization, Diabetes Media Foundation (DMF), devoted to disseminating information about, and generating Continue reading >>

Diabetesmine | Mobihealthnews

This week popular diabetes blog and community, DiabetesMine announced the winners of its annual 2011 DiabetesMine Design Challenge. Started in 2008, the Design Challenge tasks participants with finding creative new ways to improve the lives of those with diabetes. Perhaps unsurprisingly, one of this year's winners developed an iPhone/iPad app.The three grand prize winners, who each received $7,... The California Healthcare Foundation (CHCF) just published a must-read report called Participatory Health: Online and Mobile Tools Help Chronically Ill Manage Their Care, by health economist and management consultant Jane Sarasohn-Kahn."Many of the entrants into this market are from outside traditional health organizations," Sarasohn-Kahn writes in her conclusion. "Health Providers, institutions... Wireless biometric sensors, connected health devices, mobile phones and online portals hold the promise of automating the management of chronic diseases. Some service providers, however, aim to do no such thing.If you truly automate the process of measuring a patient's blood pressure, for example, do you miss the key opportunity to engage that patient in their care regimen? If a chronic... During the opening plenary session at the Health 2.0 conference this afternoon, Dr. Alan Greene, Chief Medical Officer of A.D.A.M. wove historical trivia with mixed metaphors to explain Health 2.0:The first two presidents of the U.S., Washington and Adams, never shook hands while president, instead they bowed, Greene said. U.S. citizens similarly bowed back. President Thomas Jefferson changed... Continue reading >>

Behind The Scenes Of Medical Blogs: Diabetes Mine

Behind the Scenes of Medical Blogs: Diabetes Mine Behind the Scenes of Medical Blogs: Diabetes Mine Ive already presented several famous medical bloggers to you. My aim is to get my readers closer to these quality blogs and the bloggers as well. Id like to convince more and more health professionals/people interested in medicine to create their own blogs by providing interesting behind-the-scenes interviews. The eleventh blogger in this series is Amy Tenderich, the author of DiabetesMine.com , a blog about diabetes. Youve been blogging for more than 3 years now. How can you maintain your blog? How much time does it take? DiabetesMine.com has kind of taken over my life, for sure. I now post every weekday, and sometimes on weekends, too. Its very time-consuming. But its also therapeutic, because the blogging has become intertwined with my diabetes care and my support community. I feel like I couldnt stand the diabetes if I didnt have that. How do you find information for your blog? You certainly read other blogs, journals but do you use RSS reader? How many blogs do you track? Of course I peruse hundreds of blogs and medical sites. Im a big fan of the Bloglines prescription service. Honestly, I could hire an assistant just for tracking all the health and diabetes-specific information on the web. But what I choose to write about is really mostly the stuff that just catches my eye, or that I believe will truly impact peoples lives. You got special mention in Medgadgets Weblog Awards; youve been featured in several magazines. Im pretty sure you are one of the most respected ambassadors of diabetes. What do you think about it? Thats very kind of you. In fact, theres a very rich community of patient bloggers out there. I think we all add value with our individual strengths an Continue reading >>