Diabetes Resources And Advocacy Groups
You are here: Home / Health Information / Diabetes Resources and Advocacy Groups Have you ever looked for diabetes resources and advocacy groups online? Do you wonder which are the best sites for support and finding answers to questions you may have? I attended a Diabetes Linkup last week hosted by Astra Zeneca. Committed to the long-term health of people with diabetes, AZ offers three programs you might not know about. Fit2Me a free online diet and lifestyle support program that helps adults with type 2 diabetes and cardiovascular disease. Technology helps people custom fit plans to their own likes and dislikes. Learn more at Fit2me.com . ON IT Movement a movement featuring Dr. Phil McGraw that helps people with type 2 diabetes take an active role in overcoming emotional and psychological barriers that may come up while managing the disease. See the 6 Rules to Get ON IT at ONITMovement.com . Everyday Steps a program designed with the help of the Diabetes Hands Foundation to help those living with type 2 diabetes develop and maintain a walking routine. Find the Everyday Steps Guide at EverydayStepsGuide.com . At the linkup, I also met representatives from several diabetes advocacy organizations. These folks work hard to support the diabetes community by providing online resources and forums, advocating to Congress, tracking diabetes-related activities at the Food & Drug Administration (FDA), and organizing in-person support groups. DiabetesSisters a group that offers a range of education and support services to help women of all ages with all types of diabetes live healthier, fuller lives. I was so inspired by CEO Anna Norton that I volunteered to get a group going in my area! Learn more at DiabetesSisters.org . Diabetes Hands Foundation an organization that strives to Continue reading >>
Diabetes Foundation Of Mississippi | Ridgeland, Ms
Welcome to The Diabetes Foundation of Mississippi Our mission is simplewe save lives every day! The Diabetes Foundation of Mississippi (DFM) is the state's premier nonprofit health organization working to prevent diabetes and associated complications as well as work to improve the lives of every child, adult, and every family touched by type 1 or type 2 diabetes. We accomplish this through education, support, advocacy, medical assistance and research. "We are family!" is our theme for 2018! Bring your sisters, brothers, parents, and anyone you consider family with you to walk and make a difference in the lives of people you care about who live with diabetes 24/7! Share some of that love and celebrate with the Diabetes Foundation of Mississippi! Walk in support of a Grandmother who cannot afford her medications or to help a newly diagnosed child attend summer diabetes camp through your generosity. Everyday miracles happen from your caring and support! Click HERE to check out the walk site closest to you! Teams of families, friends, classmates, Sunday school classes, and co-workers are welcomed along with individual walkers to walk, stroll, and roll with the Diabetes Foundation of Mississippi to help Mississippi kids and adults living with type 1 or type 2 diabetes!For more information or for FUNdraising ideas call DFM at 601-957-7878. Businesses and organizations who wish to participate in any of the Walks as Start/Finish line, Rest Stop Sponsors, T-Shirt Sponsors or with In-Kind donations, please call 601-957-7878. Continue reading >>
A Patient Advocate Transforms Diabetes Care
A Patient Advocate Transforms Diabetes Care "The single most empowering thing that my doctor did," boasts Lynn Gifford, "is to hand me my own medical chart. Then I knew we were in this together." Lynn and six other patients from the Family HealthCare Center in Fargo, North Dakota participated in this "handing over" at the inaugural group visit launched by the Diabetes Clinic. Lynn, who once described herself on a radio talk show as a "falling-apart, overweight woman with diabetes, gout, hypertension, high cholesterol, and major clinical depression, without any health insurance," is on top of her game. A self-proclaimed health care advocate for years, Lynn is also employed part-time as an activity director at a psychosocial rehabilitation center. Lynn's depression led her to the Southeast Human Services Center, operated by the North Dakota Department of Human Services. There she received medications for her depression, virtually free of charge. But since the Center provides only mental health services, they could only prescribe medications related to depression and she ignored other symptoms she was having because she could not pay for an examination, let alone expensive medications. The folks at the Center repeatedly advised her to check out the Family HealthCare Center and finally, she did. That encounter changed her life. Lynn is one member of a small group of pioneers who agreed to play a role in the transformation of diabetes care at the Family HealthCare Center. Seven patients agreed to test out a "group visit." During the appointment, they all visited separate stations (weight, foot exam, vital signs, smoking counseling, lab testing, and verbal review of medications) in a large auditorium-like room. The group then participated in a question and answer session con Continue reading >>
Advocate
Welcome to Novo Nordisk in the United States We wouldnt be able to effectively move the needle on sound healthcare policy without the help of our partners. By working with key stakeholders we can maximize our voice, reach and impact. To defeat serious chronic conditions, we need to do more than supply the right medicine. We partner with patients, healthcare professionals, advocacy organizations, policymakers and others to raise awareness, improve prevention, promote earlier diagnosis and expand access to care. Novo Nordisk is a founding member of the DAA, a coalition that represents patient, professional and trade associations, other nonprofit organizations and corporations. The DAA is united in the effort to change the way diabetes is viewed and treated in America. The vision of the DAA is to influence change in the US healthcare system to improve diabetes prevention, detection and care, and to speed the development of pathways to cures for diabetes. Learn more at diabetesadvocacyalliance.org We are a member of the Obesity Care Advocacy Network (OCAN), and organization focused on uniting and aligning key obesity stakeholders and the community around key obesity-related education, policy and legislative efforts in order to elevate obesity on the national agenda. Learn more at obesitycareadvocacynetwork.com Cities Changing Diabetes is a global program created by Novo Nordisk to address the rise of diabetes in urban settings and the vulnerabilities that contribute to it. In the US, Novo Nordisk is working in Houston, Texas with local stakeholders to develop and implement solutions. ACT for Diabetes stands for Achieving Change Together for Diabetes. We believe that advocacy is essential to achieving policy change and legislation to give diabetes the attention it deserves. Continue reading >>
When A Nonprofit Business Model Turns Bad, Patients Sidestep Advocacy Groups
When a Nonprofit Business Model Turns Bad, Patients Sidestep Advocacy Groups NPQ has written repeatedly about how the funding of patient advocacy groups by pharmaceutical and medical device corporations has hijacked a frontline of defense for those with chronic diseases. In other words, when you take money from business interests whose bottom-line profits are made off your constituents, it mutes your voice in a pernicious way that should not be tolerated. Yesterday, Kaiser News reported on a win for patient advocates in Nevada as they goosed a bill in the legislature requiring insulin makers to disclose the profits they make on the drug necessary to the survival of the 1.25 million Americans who live with Type 1 diabetes. The cost of insulin has risen more than threefold over the last decade, only to be met with a truly stunning silence from patient advocacy nonprofits. In this case, the patients had to go it alone and without the support of patient advocacy groups like the American Diabetes Association, notable for their absence in this fight. Why so quiet? That traces back to their financial ties to the very pharmaceutical industry being challenged in such legislation. This article says that many of the dozens of U.S. diabetes advocacy organizations, large and small, garner significant portions of their funding from insulin manufacturers. The Nevada bill in question would require such contributions be openly disclosed. In 2016, two of the big three insulin producersEli Lilly and Sanoficontributed at least $4.7 million to such national patient advocacy groups as the American Diabetes Association, Diabetes Patient Advocacy Coalition (DPAC), JDRF International and the Diabetes Hands Foundation, according to company disclosures. The third major insulin manufacturer, Novo Continue reading >>
Diabetes Advocacy Alliance
Our mission is to unite and align key diabetes stakeholders and the larger diabetes community around key diabetes-related policy and legislative efforts in order to elevate diabetes on the national agenda. The Academy of Nutrition and Dietetics (AND), formerly the American Dietetic Association, is the world's largest organization of food and nutrition professionals. AND is committed to improving the nation's health and advancing the profession of dietetics through research, education, and advocacy. For more information, visit www.eatright.org . The Diabetes Advocacy Alliance is working to increase awareness of, and action on, the diabetes epidemic among legislators and policymakers. We are a diverse group of patient advocacy organizations, professional societies, trade associations and corporations, sharing a common goal to defeat diabetes. Explore our site to learn more about what's on the front burner in our communications with Capitol Hill and the Administration. The Diabetes Advocacy Alliance (DAA) has public policy and legislative priorities in three areas: prevention of type 2 diabetes; improved screening and detection of those adults with prediabetes, undiagnosed diabetes, and gestational diabetes; and improved care for people whose diabetes has been diagnosed. A summary of DAA advocacy priorities is presented in this document: Advocacy Priorities in 2018 . Continue reading >>
Advocacy: American Diabetes Association
2017 was a remarkable year for diabetes advocates across the country. The ADA emerged as a leader during many key political debates, shaping the future of health care for people with diabetes. As we look ahead to 2018, lets take a moment to celebrate our collective success as we sought to further our strategic goals of driving discovery, raising voice, and supporting people. Some of our victories included: Advocates taking action at record levels through sending alerts, signing petitions, and conducting in-person meetings on our advocacy priorities including health care, insulin affordability, and funding for diabetes research and programs. During our annual Call to Congress, 251 advocates, high-profile diabetes researchers, professional football players, and ADA staff gathered on Capitol Hill to harness support for our legislative priorities. At the beginning of the year, the ADA became a founding member of a coalition of more than 20 patient advocacy organizations that worked together to defend the Affordable Care Act (ACA) from various repeal efforts in Congress. Collective advocacy efforts within the coalition and by the ADA and our advocates gained national media attention and helped defeat the repeal of the ACA numerous times throughout the year. The ADA raised its voice at the state level by participating in hundreds of meeting, briefings, and Diabetes Days at State Capitols as well as submitting letters, comments, and statements in support of our advocacy priorities. These efforts led to a record-setting 70 legislative and regulatory wins in states across the country! This included 30 state-level wins that protected existing levels of health care insurance benefits for nearly 7 million Americans in states across the country by defeating proposals to repeal prev Continue reading >>
Diabetes Organizations
Stay up-to-date on current diabetes themes, proven therapeutic options, and knowledge resources and tools for you and your patients, and find detailed information on Novo Nordisk diabetes products. Since the launch of its first pen needle in 1985, Novo Nordisk has been committed to enhancing injection experience by putting technology in patient hands. NovoFine Plus is the latest example of that commitment. Find information on our treatment for chronic weight management in adults who are overweight with one weight-related comorbidity or obesity. Use this online medical resource to search for answers to frequently-asked questions about Novo Nordisk products or submit a question to our Medical Information team. Welcome to Novo Nordisk in the United States The organizations listed below can put you in touch with self-help, advocacy, and support groups whose members share your issues and concerns about diabetes. Though some of the groups listed below have received funding from Novo Nordisk they remain independent organizations. We cannot validate all of their content. American Association of Clinical Endocrinologists An organization dedicated to serving the interests of endocrine patients and the doctors who treat them. Continue reading >>
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Diabetes Advocacy Organizations: 2014 Outlook
We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. At the close of each year, we like to tap the top diabetes advocacy organizations to share what they feel they've accomplished, and what kinds of plans / goals / strategies they have in mind for the new year ahead. So, once again we asked the pointed questions: Did they live up to their own expectations for 2013? And what do they envision for continuing to help the D-community in 2014? Below are the answers we received from their various leaders and spokespeople (presented in alphabetical order). Another great year down, and headed exciting places for the next? Again, you be the judge... American Association of Diabetes Educators (AADE) 2013: There were a multitude of public-facing initiatives we worked on in 2013 and will continue to focus on in 2014 that seek to enhance the lives of people living with diabetes and prediabetes. Just some of the projects: Building on a 2012 grant we received from the CDC to expand the National Diabetes Prevention Program , AADE is now funding 30 sites in 14 states. Through these sites, about 700 people at risk for diabetes are participating in a year-long lifestyle change program. (Data shows that people who have gone through the program are 58% less likely to develop diabetes.) AADE's programs all started in May/June 2013 so we don't have final numbers yet, but results so far are positive. An overarching goal of this project is to make this lifestyle change program a covered healthcare benefit for people with prediabetes. We were very active on the legislative and regulatory front. We continued to advocate for licensure of diabetes educators at the state level (the first diabetes educa Continue reading >>
Tandem Diabetes Care Community Advocacy Launchpad
Founded in February 2015, Beyond Type 1 creates and funds a portfolio of programs, technologies and innovations that those living with Type 1 diabetes need to manage, live and thrive. Their goal is to highlight the brilliance of those fighting this disease every day while always working toward ensuring a cure is on its way. If a picture is worth athousand words, imagine how much we could all say about life with diabetes in30 days. Youre invited to make diabetes visible and show what it is like tolive with diabetes. Use #MakeDiabetesVisible when you share. The Juvenile Diabetes Cure Alliance (JDCA) advocates for substantial resources to be directed toward Practical Cure research. The target of this advocacy includes major diabetes charitable organizations and T1D research centers throughout the United States. In addition, the JDCA works with and provides information to donors who want their contributions to support T1D cure research and ensure that their gifts are being used solely for that purpose. WalkWithD is a program to help people understand what its like to live with diabetes. Participation is simple: share your story, and connect with your peers. Using social media as your megaphone, show what your diabetes life is really like through blog posts, photos, tweets, status updates, and videos, and tag your stories with the #WalkWithD hashtag. The Diabetes Advocacy Alliance is working to influence change in the US health care system to improve diabetes prevention, detection and care and to speed the development of pathways to cures for diabetes. Find out more about their current initiatives at their website. The TCOYD Research Registry is a joint project to help advance knowledge and care from two national leaders in diabetes education and patient empowerment, Taking Continue reading >>
Broader Screening Guidelines For Diabetes Urged By Diabetes Advocacy Groups
Broader Screening Guidelines for Diabetes Urged by Diabetes Advocacy Groups Supported byHealth AffairsReport:The U.S. Preventive Services Task Force Should Consider a Broader Evidence Base in Updating Its Diabetes Screening Guidelines (The Healthcare Leadership Council is a member of the Diabetes Advocacy Alliance.) Washington, DCAmerica cannot stop the growing wave of type 2 diabetesand its complications and costsunless the recommendations for screening are broad enough to identify patients who are at risk for the disease. Screening people at high risk for diabetes can identify those with prediabetes, who can be referred to low-cost, community-based diabetes prevention programs. Screening can also identify those who have diabetes but do not know it, and get them into treatment as early as possible. Those were the views expressed today by the Diabetes Advocacy Alliance (DAA) a diverse coalition of 18 organizations that has come together to change how the nation approaches the health and economic burdens posed by diabetesin welcoming the January 2012 issue of the policy journalHealth Affairsfocused on the topic of diabetes. One of the most critical health challenges in 2012 is to fully address the grave danger that diabetes poses to the health of Americans and the health of the US economyand diabetes screening guidelines that are multiple risk-factor based are an important part of that, said Martha Rinker, Chief Advocacy Officer of the American Association of Diabetes Educators, which is a DAA co-chair organization. Diabetes is a public health crisis that threatens to overwhelm our health system, Rinker said. Some 79 million Americans are on the verge of diabetes and another 7 million have undiagnosed diabetes. We could very likely prevent millions of those people from Continue reading >>
Diabetes Advocacy Groups: 2015 Successes And 2016 Plans
We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. Once more with feeling: HAPPY NEW YEAR 2016! We have a lot of traditions here at the 'Mine, but one of our favorites is querying the country's top diabetes advocacy organizations at the end of each year to share what they've accomplished, and what they have in store for the new year ahead. So, once again we asked the pointed questions: What did these groups actually achieve in 2015? And what do they plan to make happen in 2016? Below are the answers we received from their various leaders and spokespeople (in alphabetical order).There is a ton of great information here about what's happening in the Diabetes World, so we invite you to grab a cup of coffee, get yourself comfortable, and dig in... American Association of Diabetes Educators (AADE) This was another busy year. The board of directors initiated our 2016-2018 Strategic Plan in mid-2014 with an environmental scan that includedgathering input from all corners of the diabetes community including members ofthe DiabetesOnline Community and people with diabetes. A few points are worth noting: Toguide our work we created a Spheresof Influence framework , a schematic that maps the influences and interactions at each level of diabetesimpact on individuals and society. We have placedpeople with, at risk for or affected by diabetes and related chronicconditions, at the center of this framework because you are the focus of ourwork. This framework helps indicate the many areas where diabetes educators anddiabetes education have opportunities to make an impact. Our new vision, missionand guiding principles along with strategies and outcomes will be on the AADEwebsite in early Continue reading >>
About Diabetes Advocacy...
Diabetes Advocacy is a website dedicated to those living with Type 1 Diabetes. Diabetes Advocacy is filled with knowledge, resources, and support. It has become a voice for those living with Type 1 diabetes .It has been heard by politicians on both provincial and federal levels. Diabetes Advocacy was instrumental in the 2004 reform of the Disability Tax Credit which now allows people living with Type 1 diabetes to receive the credit. It continues to work to improve access to devices and supplies for those living with diabetes in Canada, as well as working to protect the rights of children in schools. Diabetes Advocacy is run by Barb Wagstaff, a mother of two wonderful young men.Barb's youngest son was diagnosed with Type 1 Diabetes when he was just two years old. From that day forward, she dedicated much of her time and energy to making the best possible life for her son and for other living with this disease. Barb created this site when she could not find enough information and support for Canadians. She set about attempting to fill that gap by focusing on issues and challenges that affected Canadians living with Type 1 Diabetes. Barb is a mother with no medical background who works as a parent and an advocate to provide an information source and support network to people living with diabetes throughout Canada and the world. Barb and Diabetes Advocacy continue to grow each day with the help and support of people who visit this site. This site receives no federal or organizational funding. You can support Diabetes Advocacy through purchases made in our online store . If you would like to further assist or advertise your authorized diabetes related item on this site, please contact us .We accept advertisements for products and services that we deem to be of interest to Continue reading >>
Diabetes Advocacy: 2017 Milestones And 2018 Goals
We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. Hey, Diabetes Community -Happy New Year 2018! It's a tradition here at the 'Mine to essentially "call the diabetes advocacy organizationsto the mat" at the end of each year to explain what they've accomplished, and what they're aiming for in the new year ahead. So once again, we asked 13 leading U.S. diabetes non-profits point-blank: What did they actually achieve in 2017? And what do they plan to make happen in 2018? Below are the answers from the various leaders and spokes-folks of the first half of these orgs.Please tune in next week for the rest ( see Part 2 here ). Note: There's a ton ofgreat info here about what's happening in the Diabetes World, sowe invite you to settle in with a cup of coffee, or even consider printing this piece out for further review... and of course, please share your thoughts in the comments section! American Association of Diabetes Educators (AADE) Throughout the past year, AADE continued work on our 2016-2018 StrategicPlan with a focus on empowerment, collaborations, technology and the future fordiabetes educators. At the AADE annual conference in August, we focused on empowerment by sharing the new languageguidance for healthcare professionals . Together with the AmericanDiabetes Association, AADE hopes to drive change in word choice and incommunications about diabetes. We must all think about the impact of the wordswe use and how these can positively or negatively impact self-care. Wordsshould be used to empower, inspire, and most importantly, drive positiveoutcomes. This "patient-first" theme at the AADE annual conference included several sessions offeringvaluable learnings and perspec Continue reading >>
National Diabetes Advocacy Orgs: Success & Goals
We're sorry, an error occurred. We are unable to collect your feedback at this time. However, your feedback is important to us. Please try again later. As there seems to be consensus that 2016 sucked in many ways, we're especially glad to greet a new year. It's a tradition here at the 'Mine to essentially call the country's top diabetes advocacy organizations to the mat at the end of each year to explain what they've accomplished, and what they're aiming for in the new year ahead. So as always, we asked the pointed questions to a dozen leading U.S. diabetes non-profits: What did these groups actually achieve in 2016? And what do they plan to make happen in 2017? Below are the answers we received from the various leaders and spokes-folks of the first half of these 12 leading organizations (in alphabetical order). Please tune in tomorrow for the rest. Note that there's a ton of great info here about what's happening in the Diabetes World, so we invite you to settle in with a cup of coffee, and in tomorrow's post, we'll include a link to the full PDF report for extended reading... American Association of Diabetes Educators (AADE) In 2016, we kickedoff the first year of AADEs 2016-2018 Strategic Plan , which puts people with, at risk forand affected by diabetes at the center of all our work. Everything we've doneand will continue to do is reflected in these strategies, from access todiabetes education initiatives to our work in diabetes prevention and newmodels of care. Technologywas a huge emphasis in 2016. To show our commitment to staying ahead of thecurve, we hired AADEs first Chief Technology and InnovationOfficer , CrystalBroj. She has worked with AADEs Technology Workgroup a mix of members andother experts from the Diabetes Online Community (DOC), related diabetes o Continue reading >>
